Charlet Crichton reports back on the letter she wrote on behalf of the UK CV Family vaccine injured support group which she wrote about here just over a week ago.
AFTER months of waiting, I have finally received a reply to the email I wrote on behalf of our support group, UK CV Family, to Dame June Raine, the Chief Executive of the Medicines and Healthcare products Regulatory Authority (MHRA) whose statutory job it is to ensure vaccines are safe. In it I offered our help and suggested the MHRA work with us to ensure that all practical measures needed for people like us who have suffered adverse reactions to the Covid vaccines are put in place
The response I got was not from Dame June Raine herself, but from ‘Rebecca’ (no surname) who works in the MHRA ‘customer experience centre’. I can only conclude that Dame June herself is far too busy to respond to my letter written on behalf of our 800 members who are suffering life-changing adverse reactions.
In this letter, we are directed to the Human Medicines Commission, Expert Working Group, whatever that may be, which ‘Rebecca’ proudly states works ‘closely with their public health partners in reviewing the effectiveness and impact of the vaccines to ensure the benefits continue to outweigh any possible side-effects.’
How does this help us, Rebecca? Does this information help me get well enough to run my business again? Does this information help our support group in any way?
The letter goes on to say that we can report our symptoms to the Yellow Card scheme.
And. Then. What?
The Yellow Card reporting system is just that; you report and the report gets filed. There is no practical help available from the scheme, but it seems to be where we keep getting told to turn to in an ever recurring cycle.
The letter then directs me to the MHRA’s ‘Patient Involvement Strategy 2021-25’. Contained within this is more bureaucratic process meaningless newspeak – a statement that by June 2022 this strategy would include ‘tangible and an increasing volume of evidence that the agency is demonstrating that it is taking into account what patients and the public have told the agency and that it is acting on that input’.
So, my next question to Dame June Raine, Rebecca, or whoever else is assigned to answer me, will be this:
‘Writing to you on behalf of 800 people and being someone who has suffered a life-changing adverse reaction myself, can you please listen to what we have to say and act on our input? We need practical help, not a callous pre-written fob-off.’
You can read the letter here.